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dc.contributor.authorBerben, Lut
dc.contributor.authorDenhaerynck, Kris
dc.contributor.authorDobbels, Fabienne
dc.contributor.authorEngberg, Sandra
dc.contributor.authorVanhaecke, Johan
dc.contributor.authorCrespo-Leiro, María Generosa
dc.contributor.authorRussell, Cynthia L.
dc.contributor.authorDe Geest, Sabina
dc.date.accessioned2019-04-01T12:00:13Z
dc.date.available2019-04-01T12:00:13Z
dc.date.issued2014-09-26
dc.identifier.citationBerben L, Denhaerynck K, Dobbels F, et al. Building research initiative group: chronic illness management and adherence in transplantation (BRIGHT) study: study protocol. J Adv Nurs. 2015; 71(3): 642-654es_ES
dc.identifier.issn0309-2402
dc.identifier.urihttp://hdl.handle.net/2183/22449
dc.descriptionProtocoles_ES
dc.description.abstract[Abstract] AIM: This article describes the rationale, design and methodology of the Building research initiative group: chronic illness management and adherence in transplantation (BRIGHT) study. This study of heart transplant patients will: (1) describe practice patterns relating to chronic illness management; (2) assess prevalence and variability of non-adherence to the treatment regimen; (3) determine the multi-level factors related to immunosuppressive medication non-adherence. BACKGROUND: The unaltered long-term prognosis after heart transplantation underscores an urgent need to identify and improve factors related to survival outcomes. The healthcare system (e.g. level of chronic illness management implemented) and patient self-management are major drivers of outcome improvement. DESIGN: The study uses a survey design in 40 heart transplant centres covering 11 countries in four continents. METHODS: Theoretical frameworks informed variable selection, which are measured by established and investigator-developed instruments. Heart transplant recipients, outpatient clinicians and programme's directors complete a survey. A staged convenience sampling strategy is implemented in heart transplant centres, countries and continents. Depending on the centre's size, a random sample of 25-60 patients is selected (N estimated 1680 heart transplant recipients). Five randomly selected clinicians and the medical director from each centre will be invited to participate. CONCLUSION: This is the first multi-centre, multi-continental study examining healthcare system and heart transplant centres chronic illness management practice patterns and potential correlates of immunosuppressive medication non-adherence. The knowledge gained will inform clinicians, researchers and healthcare policy makers at which level(s) interventions need to be implemented to improve long-term outcomes for transplant recipientses_ES
dc.language.isoenges_ES
dc.publisherWileyes_ES
dc.relation.urihttps://doi.org/10.1111/jan.12519es_ES
dc.rightsThis the peer reviewed version of an article which has been published in final form at Wiley Online Library. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for self-archiving.es_ES
dc.subjectChronic illnesses_ES
dc.subjectHealth behavioures_ES
dc.subjectHealthcare systemes_ES
dc.subjectMedication adherencees_ES
dc.subjectNursinges_ES
dc.subjectOrgan transplantationes_ES
dc.subjectPatient compliancees_ES
dc.titleBuilding research initiative group: chronic illness management and adherence in transplantation (BRIGHT) study: study protocoles_ES
dc.typeinfo:eu-repo/semantics/articlees_ES
dc.rights.accessinfo:eu-repo/semantics/openAccesses_ES
UDC.journalTitleJournal of Advanced Nursinges_ES
UDC.volume7es_ES
UDC.issue3es_ES
UDC.startPage642es_ES
UDC.endPage654es_ES


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