Family Quality of Life and Autism Spectrum Disorder: Comparative Diagnosis of Needs and Impact on Family Life

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Family Quality of Life and Autism Spectrum Disorder: Comparative Diagnosis of Needs and Impact on Family LifeDate
2022Citation
Losada-Puente, L., Baña, M., & Asorey, M. J. F. (2022). Family quality of life and autism spectrum disorder: Comparative diagnosis of needs and impact on family life. Research in Developmental Disabilities, 124, 104211. https://doi.org/10.1016/j.ridd.2022.104211
Abstract
[Abstract] Background: Families of children with autism spectrum disorders (ASD) face ongoing challenges
that can affect their family life. Helping those families cope with the impact of ASD and promote
more positive family and child outcomes requires research to better understand the differential
aspects of quality of life for those families.
Aim: This article examined the quality of life of 77 families (n = 45 families with children with
ASD aged 0–12 years old, and n = 32 families with other developmental disabilities).
Methods and procedure: The Family Quality of Life Scale (FQOL) was applied.
Outcomes and results: The relationships between importance and satisfaction were analyzed,
contrasting differences between families, and studying the influence of age. Results show the
presence of common needs, as the higher ratings in importance versus satisfaction evidenced, but
also specific and more evident needs in families of children with ASD, motivated by the differential
characteristics of the disorder and their environment. Age was relevant to focus support on
priority areas.
Conclusion: The need to adapt to family individualities to promote their quality of life was
concluded.
Implications: Those findings reinforce the importance of bringing together theoretical knowledge
and evaluation of professional practice as a framework for converting the latter into good practices
and quality actions
Keywords
Quality of life
Family life
Family needs
Family support
Family life
Family needs
Family support
Description
Financiado para publicación en acceso aberto: Universidade da Coruña/CISUG
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Rights
Atribución-NoComercial-SinDerivadas 4.0 Internacional
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